Bratsk, 30.01.21 (IA "Teleinform"), - in Bratsk from the means of the city charity marathon "Help the child, and you will save the world" will help a 12-year-old boy suffering from the progressive muscle dystrophy of Douced. This is reported by the press service of the local mayor's office.
The disease from the child was found when the boy was five years old. The disease is genetic and occurs among male people. In this case, at an early age, the decay of muscle tissue begins, which leads to skeletal deformation, develops respiratory and heart failure, mental and endocrine disorders. According to experts, the radical method of treatment is still not. Prolong the child life allows the systematic reception of the drug "Deflazagort".
- The child really needs support. Mom brings him up alone. I recently left the father of the child. Therefore, the family is now particularly needing help and emotional support. The boy has a complex genetic disease. Unfortunately, the drug that is in the list of mandatory medicines does not quite suit him with long-term use. Therefore, today it was decided to allocate more than 175 thousand rubles for the purchase of a suitable drug in order to facilitate his life and deal with the existing disease, "said the chairman of the organizing committee, Deputy Mayor of Bratsk Marina Zubakova.
The decision for each occasion is taken collegially with the participation of specialists from different spheres after a comprehensive consideration of the issue and assessing the possible participation of other structures. The Marathon Foundation is formed through the participation of non-indifferent citizens and is replenished regularly. Every year, charitable shares with children's work are organized in schools and kindergartens, and concerts are held. The proceeds go to the score of the marathon to help need children. Another source of replenishment of the Marathon Foundation is the annual charitable auction "Generous Tuesday", explained in the Bratsk administration.
REFERENCE:
Urban charity marathon "Help the child, and you will save the world" is implemented in Bratsk since 2007. During this time, the help was provided by 232 children, 74 of them - several times. The total amount of funds aimed at treatment amounted to more than 12 million 700 thousand rubles. Now on the score of the marathon there is about 687 thousand rubles.
