Almaty. Kukadzi 22. Kaztag - Madina Alimkhanova. MuWest Kazakhstan Dunhu, Emir Shamr Shakmar's Vabereki Vanotambura neSpinal Muscle Atrophy (Sma) vari kuyedza kubuda anopfuura madhora mazana maviri nemashanu kuti aponese hupenyu hwake.
"Chirwere ichi hachina kumirira, haangamiri. Iyo inofambira mberi, kutora anenge chiuru chimwe chete mudenga pa emir pazuva. Hatigone kukumbira chirwere kumisa, kutambura uye kutipa nguva yekuunganidza mari yekurapwa. Nehurombo, hazvibviri kutaurirana pasina Zolgensma. Mushure mezvose, zolgensma inogona kumisa kufambira mberi kwechirwere uye kumutambudza kwakashata pane chidiki chidiki cheEmbion. Zuva rega rega ndinovata nepfungwa yekuti mangwana tichavhara muunganidzwa uye isu tichaunganidzwa muAmerica remuchero unokosha, uye mushure menguva yakati reMirir, tichavafarira kubudirira, "Amai vakanyora Amai veTab Sabina pane Social network.
Pamusoro pekurwa kwekuponesa hupenyu hwemwanakomana wake, vabereki vaMiratidzo vari kuedza kuponesa uye hupenyu hwevamwe vana vari kutambura kubva kuSma uye vanoona kuti vanobatwa muKazakhstan yemahara.
"Kuwedzera pakuunganidza paZolgensma, tiri kuyedza kurwira kuti vana vave nechirwere chakadai vakatanga muKazakhstan. Kupfuura zvese, hemus haasi iye oga mwana ane sm uye, zvinosuruvarisa, kwete wekupedzisira. Isu tiri kunetseka kwete nezve chimwe chinhu chisingagoneke, asi kwehupenyu hwevana vedu. Mushure mezvose, vanhu vakangwara vakatogadzira gadziriro nhatu dzekugadzirira kurapwa kweSM. Vana ndidzo ramangwana reKazakhstan, asi nekuda kwechimwe chikonzero Kazakhstan anomhanyisa vana venguva yemberi, achivapa mhosva kurufu. Uye semazuva ese, vanhu vasina hanya vari kuedza kugadzirisa dambudziko rave risati rave rekuti, "Sabina akanyora.
Kuti uchengetedze mukomana genera rimwe chete rezororo reZolgentma rinodiwa Zvino Emir Rimwe gore uye mwedzi mipfumbamwe.
Sekureva kweSabina, miviri yenyika haisati yabvuma kutambudzika kwavo
"Chete dzehutano hwehutano manejimendi vakati vakaisa chikumbiro kuti chibudise sarudzo pamwana uyu. Uye saka hapana akandishevedza, haana kupa chero chinhu, hapana anopindura tsamba. Patinounganidza mari isu pachedu, "Kaztag akataura neMuvhuro neSabina.
Kazvitha akakwidza nyaya yebasa rehupamhi hweKazakhstan nemubvunzo wezvakaitwa kuti aponese hupenyu hwe emir SHAKHMarov uye achigadzirisa dambudziko rekurapa kwevana vakadaro.
Iwe unogona kubatsira Emir nekutumira chero huwandu kune inotevera nhoroondo:
Kaspi Bank OJSC
Mepu Nhamba: 5169 4971 4460 6583
8 771 48 75 55 SABINA SAGYGALIVEVN D. (MAMA Emir)
OJSC SBank Kazakhstan
Mepu Nhare: 4263 43333 3483 6340
8 771 48 75 55 SABINA SAGYGALIVEVN D.
OJSC Bank Centrecrecrecrecrecrecrecrecrecrecrecrecrecrecrecrecitit
Mepu Nhamba: 4899 9333 3355 9357
OJSC Halyk Bank.
Mepu Nhamba: 4405 6397 1084 2392
8 705 328 06 63 Checkers Taleh I. (Baba Emir)
For Russia:
Sberbank 4276 4600 1801 5623
8 987 783 63 40 Elena Sergeevna K. (Shamwari yepedyo yemhuri)
Paypal @ PaypeMir.