Bratsk, 30.01.21 (IA "Teleinform"), - Muri Bratsk mu buryo bw'Abateraniro ry'umujyi "fasha umwana, uzakiza isi" izafasha umuhungu w'imyaka 12 urwaye imitsi yateye imbere dystrophy ya Dopuce. Ibi bitangazwa na Serivisi ishinzwe Ikinyamakuru cyo mu biro by'umuyobozi waho.
Indwara y'umwana yabonetse igihe umuhungu yari afite imyaka itanu. Indwara ni genetike kandi ibaho mubantu. Muri uru rubanza, akiri muto, kubora imitsi itangira, biganisha ku guhindura skeletation, biteza imbere ubuhumekero no kunanirwa k'umutima, guhungabanya ubwenge. Ukurikije impuguke, uburyo bwo kuvura bukabije bwo kuvura butari. Kurangiza ubuzima bwumwana butuma gahunda ya sisitemu yo kwakira ibiyobyabwenge "deflazagort".
- Umwana akeneye rwose inkunga. Mama amuzanira wenyine. Mperutse kuva se w'umwana. Kubwibyo, umuryango ubu ukeneye cyane ubufasha no gutera inkunga amarangamutima. Umuhungu afite indwara igoye. Kubwamahirwe, ibiyobyabwenge biri kurutonde rwimiti iteganijwe ntabwo imufata neza ikoreshwa ryigihe kirekire. Uyu munsi, uyu munsi, yahisemo kugenera amafaranga ibihumbi n'ibihumbi birenga 175 kugira ngo afunguze imiti iboneye kugira ngo yorohereze ubuzima bwe no guhangana n'indwara zihari. "
Icyemezo kuri buri gihe cyafashwe hamwe no kwitabira inzobere muburyo butandukanye nyuma yikibazo no gusuzuma uruhare rushoboka rwindi nzego. Urufatiro rwa Marathon rwashyizweho binyuze mu kwitabira abaturage badatitaye kandi bazuzwa buri gihe. Buri mwaka, imigabane ihuriweho na gahunda y'abana yateguwe mu mashuri n'incuke, kandi ibitaramo birakorwa. Amafaranga ajya mumanota ya marato kugirango afashe abana. Iyindi soko yo kuzuza urufatiro rwa Marathon nicyo cyamunara buri mwaka "mu ku wa kabiri, ku wa kabiri.
Reba:
Umujyi wa Marathon "fasha umwana, uzakiza isi" ashyirwa mu bikorwa muri Bratsk kuva mu 2007. Muri kiriya gihe, ubufasha bwatanzwe n'abana 232, 74 muri bo - inshuro nyinshi. Amafaranga yose agamije kuvurwa agera kuri miliyoni 1200 z'amafaranga ibihumbi 700. Noneho kumanota ya marato hari amafaranga agera kuri 687.
